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Dr. Stephane Huberty

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Dr. Stephane Huberty, at his home in Rixensart, Belgium, on August 7, 2010. Dr. Huberty suffers from myasthenia gravis, a rare neurological condition. It is one of more than 5,000 “orphan” diseases, so called because there are so few sufferers that most pharmaceutical companies are reluctant to invest in cures. The 48-year-old Belgian doctor, who has had the disease for 14 years, has been taking medication he and others developed, but he can’t find investors to pay for a clinical trial. Pharmaceutical companies and other doctors say his product is unproven. So Dr. Huberty is taking a leaf out of 19th- century science and using himself as a guinea pig, and the results have been very positive. (Photo © Jock Fistick)

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PHOTO © JOCK FISTICK
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Dr. Stephane Huberty, at his home in Rixensart, Belgium, on August 7, 2010. Dr. Huberty suffers from myasthenia gravis, a rare neurological condition. It is one of more than 5,000 “orphan” diseases, so called because there are so few sufferers that most pharmaceutical companies are reluctant to invest in cures. The 48-year-old Belgian doctor, who has had the disease for 14 years, has been taking medication he and others developed, but he can’t find investors to pay for a clinical trial. Pharmaceutical companies and other doctors say his product is unproven. So Dr. Huberty is taking a leaf out of 19th- century science and using himself as a guinea pig, and the results have been very positive. (Photo © Jock Fistick)
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